Pediatric Complex Care Resource Centers (PCCRC)
The Department of Human Services’ Offices of Medical Assistance Programs (OMAP) and Development Programs (ODP) have developed a system of supports to better serve children and adolescents living in the community who receive pediatric home health care (in-home shift nursing or home health aide services) by supporting their families, caregivers, and healthcare providers.
A key component of developing this system of supports is improving the relationship between the home health care providers and families. Using the current statewide network of Health Care Quality Units (HCQUs) across the Commonwealth, Pediatric Complex Care Resource Centers (PCCRCs) were created to provide education, training, and non-medical support to caregiver teams to assist with building relationships and co-navigating the various systems and resources that are available to support them.
Resources include:
Pediatric Coach
This resource provides personalized support and intervention for caregiver teams as they work together and collaborate around the needs of the child. This may include providing problem solving, conflict resolution, and negotiating the bridge between meeting familial, social, and medical goals. They may also work individually with family members to empower them to successfully advocate and communicate needs, priorities, and concerns to the larger team. The coach will also provide education and training support to the caregiver team that will be targeted to meet each child’s specific needs and host regional family advisory workgroups aimed at providing families peer-support and a feedback loop on PCCRC resources being used.
Family Facilitator
This resource supports children and adolescents with complex medical needs as they transition from facilities and hospitals to community settings. The Family Facilitator also supports the diversion of placements from community to congregate care settings.
Online Training & Support Hub
This resource offers self-paced learning courses on various home-care topics designed for all members of the caregiver team and information on supports and resources are available through MyODP. Sample topics include relationship building, supporting behavioral health needs, durable medical equipment, and life transitions.
Explore PCCRC Resources Near You
Health Care Quality Units (HCQUs) serve as the entity responsible to county intellectual disabilities (ID) programs for the overall health status of individuals receiving services in the county programs. HCQUs work to support and improve the state ID community system by building capacity and competency to meet the physical and behavioral health care needs of people with developmental disabilities living in Pennsylvania.